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Mission Statement:

The Children's Tumor Foundation
is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by Neurofibromatosis (NF).

Charity Description:

The Children’s Tumor Foundation of Minnesota encourages and supports research for the development of effective NF treatments and cures.  Children’s Tumor Foundation supports all persons living with Neurofibromatosis, their families and caregivers by providing medical symposiums, social gatherings and other educational events.  They also assist in the development of clinical centers, best practices and other patient support tools to better create access to quality healthcare for affected individuals. 

Neurofibromatosis is the most common neurological disorder affecting 1 in 3,000 persons and affects both sexes with no particular racial, geographic or ethic distribution.  NF causes tumors to grow along various types of nerves and can affect the development of non-nervous tissues such as bones and skin. NF causes tumors to grow anywhere on or in the body.  There is no cure and no known, effective treatments.

The Children’s Tumor Foundation of Minnesota promotes awareness of NF within the medical community by educating early recognition & accurate diagnosis.  They also promote the general public’s understanding of the challenges facing a person with NF and raise awareness within the education system on the needs of children living with NF.

The Children’s Tumor Foundation of Minnesota offers the opportunity for individuals to participate in team endurance sports (NF Endurance Team) to raise money for research, promote awareness, and provide a network of caring support for those suffering with Neurofibromatosis and their families.

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